Monday, we went to Hopkins for a consultation with an ENT. Paxton had tubes put in at 12 months; however, one fell out and the other is no longer functioning. He continues to get chronic ear infections. He also gets sinus infections.
First he had a hearing test. His results came back normal in the left ear and just below normal in the right ear. My kid was a champ though. He was so sweet and so good! I was so proud of him.
Next, we waited 2 hours to be seen by our ENT. I really loved the Dr, but the resident and student that were assisting her had a very poor bedside manner. I was NOT impressed. But anyway... She is recommending that we do a swallow test first where he will drink some liquid and they'll take x-rays. I'm a little anxious to see how that will work with a 2 (almost 3) year old.
After that, he will have surgery to remove his adenoids and put in another set of tubes. They are also going to take a camera and check out his esophagus. They are also going to check for someone just below his voice box. They lost me here, but I'm going to type it as I remember it. In some cases with children with feeding/eating disorders, they have found a "spot" below the voicebox. If he has this thing, they will fill it in temporarily with some sort of gel. The gel will last 8-12 weeks and during this time, if we see an improvement in his eating, we will know the cause. If he has it...they said the gel works with 70% of patients. If he has it and if it works, they will then schedule a surgery to permanently fix it. So...basically, it's a lot of if's.
Next up...July 8th he has a consultation to talk about round 2 of fixing his hypospadius (birth defect he was born with-fixed the first time in March 2011).
Goodness, that just sounds exhausting. Sending prayers your way!
ReplyDeletePoor little guy! I hope everything goes well!
ReplyDelete